Heidi Kenyon - fort polk,La (USA)
@204.119.242.147 / http://

I have 3 kids 2 have been diagnosed with LQTS the third and oldest hasnt yet my youngest also has left ventircal hypertrophy anyone with info please contact me Kenyon@wnon.net Signed on: Thu Dec 30 18:23:06 EST 1999

Very interesting site. Best wishes to you all for a Happy New Year 2000. Signed on: Thu Dec 30 11:05:31 EST 1999

I would just like to take a moment and wish all of the special heart children and their parents best wishes for a blessed holiday season - we all have a lot to be thankful for this season. I would also like to thank everyone for all of the prayers and support during my pregnancy, when I first learned of my son's cardiac anomaly, up until the present. He's six weeks now and doing fabulously - and I don't think I'd be as strong without all of your support. So thank you - and may your family have a happy holiday season! Jodi DeMarco (mommy to Nicholas, 6 weeks, PA & HRHS) Signed on: Mon Dec 20 15:41:21 EST 1999

I would just like to take a moment and wish all of the special heart children and their parents best wishes for a blessed holiday season - we all have a lot to be thankful for this season. I would also like to thank everyone for all of the prayers and support during my pregnancy, when I first learned of my son's cardiac anomaly, up until the present. He's six weeks now and doing fabulously - and I don't think I'd be as strong without all of your support. So thank you - and may your family have a happy holiday season! Jodi DeMarco (mommy to Nicholas, 6 weeks, PA & HRHS) Signed on: Mon Dec 20 15:39:26 EST 1999

I just wanted to wish all of the special heart children and their families best wishes for a very Merry Christmas and the Happiest of New Years - we all have a lot to be thankful for. My six week old son Nicholas was born with pulmonary atresia and hypoplastic right heart syndrome, and had the BT Shunt surgery at 3 days of life. He is doing wonderfully (has been home for a month!) and we thank God every day for blessing us with such a wonderful gift. I also would like to thank all of the members of the CHD webring support group for all of the support and prayers that you gave to me during my pregnancy and since the birth of my son and for all of your continued support. May we all have a joyous holiday season. Thank you and God Bless. Signed on: Mon Dec 20 15:23:36 EST 1999

Hello Everyone Thank You for all your support and love. We all need someone in times of need. I Cried for a hour the first time I seen this site, It is very helpful to know there are people out there with the same problems, and that we are not alone. I have made so many great friends since I joined this group.I really appreciate all the e-mails . I had problems with my computer and was unable to get on for a week when I finally got on, I had 220 messages. I really felt like everyone cared. I enjoy reading the good news and seeing all the wonderful pictures of these beautiful children. My little boy says that all the children are his best friends. He loves seeing the pictures of the kids. Thank You All for your support. Happy Holidays Love Kelly mom to Timmy (CoA, Bicuspid aortic valve) COlumbus, Ohio Signed on: Sun Dec 19 22:08:38 EST 1999

Please join our support group by sending a blank message to chdwebring-subscribe@eGroups.com . Maybe one of the 200 families on the list will be able to help you. Signed on: Sun Dec 19 21:14:48 EST 1999

I have an 8 year old daughter, Anna, who was born with truncus arteriosis. At the time of her birth we were told to expect her life expectancy to be 2 years. Next month Anna will turn 9 and has severe blockage of her aortic valve. Because of severe brain damage that occured during one of her two open hearts, she is not a candidate for a replacement valve. Does anyone out there have a similar story? Signed on: Sun Dec 19 20:54:39 EST 1999

This a very good site and I'm pround to know that I have helped in a small way by being one of the first to have open heart surgery in 1953. Good Luck and GOD BLESS Signed on: Sat Dec 11 16:26:31 EST 1999

I posted a message here few months ago about my son Bradley who had coarc surgery at 3 days old and did good for awhile and we went for a check up and his tricuspid valve is leaking so we got admitted into the hospital for 44 days.While we was there he had a heart cath. and a pacemaker put in.He is now on meds to help his heart function better with less work.The doctors would like him to grow before his next surgery(on the leaking valve).He is 4 months old and weighs 11 lbs.He does'nt want to eat good so he has a feeding tube for now. Feel free to email if you want to chat! God Bless...Marty and Bradley Signed on: Mon Dec 6 00:43:42 EST 1999

My six week old baby has been diagnosed with a heart murmur. I found this site and feel so humbled. She is healthy and otherwise well. We are hopeful she will have no problems. Good luck to you all. Signed on: Mon Dec 6 00:33:40 EST 1999

My little baby is now 2 years old she has AVSD and is going to surgery tommorow, I found this site and can't stop crying, I send all my prayers and best wishes to all of you. Signed on: Sat Dec 4 08:30:37 EST 1999

Elyssa Erickson, born 7/1/98; Transposition of the Great Arteries. Elyssa was only 4 lbs. 6 oz. when she had the surgery and is now in perfect health. Elyssa is an identical twin and the only difference in the physical appearance of the two are the scars. There has been no delays in growth, mentally or physically. Signed on: Sat Dec 4 01:48:11 EST 1999

Just doing some research for my brother and sister-in-law, who just found out his son (4 Months old) has Bicuspid Valve. This will help to ease there minds and hearts. Signed on: Sun Nov 28 17:23:30 EST 1999

Kyndal is 17 mths old and was born with tetralogy of fallot.She has had 2 open heart surgeries for repair and is doing great. I love reading this web site. It makes you feel not so alone. I never realized the great number of children born with heart defects. We have a wonderful children's hospital in Arkansas. They have been our life support for the last 17 months. She will eventually have another surgery to replade her pulmonary valve, but hopefully it will not be needed until teenage or adult years. Signed on: Thu Nov 25 09:13:20 EST 1999

When I found this website, I sat at my computer and cried for 30 minutes while I read just a few of the topics that it had to offer. My son was born in Oct. 98 with a hypoplastic syndrome, specifically an AV Canal defect, pulmonary atresia and he is also asplenic. I so look forward to chatting with others regarding this topic. I don't feel quite so alone anymore. THANK YOU! Signed on: Tue Nov 23 14:33:23 EST 1999

MY DAUGHTER WHO IS NOW TWO HAD HEART SURGERY WHEN SHE WAS 3 MONTHS OLD. SHE HAD A COARCTATION OF THE AORTIC VALVE. SHE IS DOING WELL AND VISITS HER CARDIOLOGIST ONCE A YEAR NOW. I AM SO THANKFUL FOR THIS SITE AND I CAN UNDERSTAND WHAT ALOT OF YOU ARE GOING THROUGH. I PRAY THAT GOD EASES ALL OF YOUR BURDENS. WE PRAY EVERY DAY THAT LAUREN REMAINS IN GOOD HEALTH. Signed on: Sat Nov 20 17:56:19 EST 1999

We have a Daughter born in 1989 with Tricuspid Atresia. She had a Fontan operation in 1991 at the Minneapolis Children's. She did great after the surgery. This year in June, she had to have a shunt placed into the right side of her heart. It is very hard to find information on the condition of Tricuspid Atresia. Signed on: Sun Nov 14 18:14:12 EST 1999

I HAVE A 18 MO. BOY WHO HAD A PDA. IT WAS CLOSED AT 9 MO. HE JUST STARTED CRAWLING A WEEK AGO AND PULLING TO STAND TWO DAYS AGO. I WOULD LIKE TO KNOW IF THERE IS ANYONE OUT THERE WHO HAD THIS SIMILAR PROBLEM. PLEASE E-MAIL ME Signed on: Fri Nov 12 17:07:56 EST 1999

My son was born with a coarc, it was diagnosed 5 days after birth. He had surgery 6 days after birth and he is doing great. My prayers are with everyone. Please contact me, I'd like to talk with parents that have been through this. Signed on: Thu Nov 11 13:48:30 EST 1999

I AM WRITING BECAUSE IWAS LOOKING FOR INFO ON TRANSPOSTION OF THE GREAT ARTERIES FOR MY FRIEND. THIS IS HER SECOND CHILD WITH A HEART DEFECT. HER DAUGHTER SHELBY WAS A HYPO PLASTIC LEFT HEART. SHE PASSED AWAY JULY OF 98. I MYSELF UNDERSTAND TOO. MY SON CALEB WAS HEART BABY. HE HAD PULMONARY STENOSIS,COARCT, AND A COMPLETE A-V CANAL. WE HAVE BEEN DEVASTATED OF THIS NEWS.WE ARE SEEKING INFO ANY AND ALL. WE CAN NOT LOSE THIS BABY. PLEASE EMAIL ANY INFO THANKS STEFANI Signed on: Tue Nov 9 19:43:19 EST 1999

Hi, I was enjoying the site and I need help. I'm 30 years old and have my first born child due the end of November. She has been diagnoesed with Trisome 18-extra chromosome 18- as well as T.O.F. I am being told she will not live past birth. Can some one explain all of this to me. If I can't be reached here, my phone is 765-537-2868 at 1998 Athur rd Paragon , Ind Thanks alot God willing, she will live. Chromosome 18 Signed on: Sat Nov 6 13:46:09 EST 1999

Sorry I forgot to leave my homepage address earlier. Signed on: Fri Nov 5 09:53:03 EST 1999

Hi I was born in 1954 with Fallots of Tetrology and have had heart surgery four times over the years, each operation doing various repairs. I kept well until 1998 when I started having rhythm problems. They don't think a pacemaker would be benificial to me right now and are hoping that new medication will 'kick-start' my rhythm back to normal. It has been interesting reading all the others with problems and I wish everyone well. Signed on: Thu Nov 4 15:52:56 EST 1999

I am a mother of three wonderful little boys. My first born Andrew was born on 10-6-92 and was diagnosed at birth with Tetrology of Fallot. He underwent corrective surgery at the age of 4 months. He is now seven years old and loves to run and play with friends and play his favorite sport, baseball. I would love to chat with any families with children diagnosed with TOF. Signed on: Thu Nov 4 10:54:36 EST 1999

Hi all. I really get wonderful courage from this site. I was a FOT baby, born 1962 - had a blalock shunt in 1964, and pulmonary valve replacement (valve created) in 1969 here in South Africa by Chris & Marius Barnard. Have lived a pretty normal active life, no medication, 3 children by normal birth, etc. However over time the valve is showing strain - calcification, regurgatation, stenosis, etc. A 2nd op is recommended, but noone seems exactly sure what the results will be as apparently this is pretty rare. So I carry on regardless!! Anyone have any advice?? Signed on: Thu Oct 21 14:46:32 EDT 1999

My little boy was born on the 11th of November 1997. He was born with Tetralogy of Fallot with Pulmonary Artresia. He had a Blalock shunt put in at 4 days of age...when he was nearly seven months old he died due to other congenital deformities. I have since had another child he is 6 months now, and healthy,it is hard to loose a child and if anyone ever needs to talk e-mail me I am always available. Signed on: Mon Oct 18 13:09:59 EDT 1999

I am 39 years old. I was born with Tetralogy of Fallot and had complete surgery in October 1963. I have been blessed with an excellent result from my operation. Signed on: Sun Oct 17 21:42:10 EDT 1999

Daughter, now turning two, born with PDA, ASD, VSD, mitral valve stenosis and diagnosed coarctation of the aorta at two weeks. Underwent surgery at the Hospital for Sick Children in Toronto, for coartation next day and PDA was tied off at this time. PDA and VSD are small so the mitral valve stenosis remains an ongoing concern. She is thriving but is small. Looking for more information about mitral valve stenosis. Wondering about how this will affect her life? her options? Signed on: Tue Oct 12 23:30:34 EDT 1999

Daughter, now turning two, born with PDA, ASD, VSD, mitral valve stenosis and diagnosed coarctation of the aorta at two weeks. Underwent surgery at the Hospital for Sick Children in Toronto, for coartation next day and PDA was tied off at this time. PDA and VSD are small so the mitral valve stenosis remains an ongoing concern. She is thriving but is small. Looking for more information about mitral valve stenosis. Wondering about how this will affect her life? her options? Signed on: Tue Oct 12 23:28:39 EDT 1999

Just trying to find all the info I can about CHD. Our family lost our Sweet Angel, Alyssa, Jan. 22,1999, ten days after her first birthday during surgery to correct a large VSD. We are now expecting again and pray that history does not repeat itself. Signed on: Fri Oct 8 19:48:30 EDT 1999

I am a mother of two year old twins boys, one of which has Truncus Ateriosus. Lance had surgery at 2 weeks of age and is doing very well. I would like to speak to someone who has twins like mine. If you have any questions about TA, I would be more than happy to help. Jenna Signed on: Mon Oct 4 17:21:32 EDT 1999

Hi, my name is Melonie and my daughter was born with Pulmonary Atresia w/Intact Ventricular Septum, a Hypoplastic Right Ventricle. She also has some kind of sinusoid problem. I don't really understand all of the medical lingo but basically she is really sick. She has her first surgery at 20 hrs old which was a BT shunt. Then at 8 months she had a Glenn Shunt. Last year at 8 years old she had a full Fontan repair. She had complications after surgery and was in the hospital for a couple of months with a chest tube in. A year later she seems to be doing okay. Her only other option is a transplant in a few years. I know the pains of being a mom to a child with a CHD. She is the light of my life and I hope to have her around for a long while. I wish you and yours happiness and good health. Signed on: Thu Sep 30 05:35:43 EDT 1999

HI MY NEW BORN SON WAS BORN WITH VSD AND DEXTRACARDIA WITH SITUS INVERSES...IS THERE ANYONE ONE ELSE WITH A CHILD LIKETHIS...I WAS TOLD EVERYTHING IS FINE BUT IAM A LITTLE AFRAID...I JUST WANT HIM TO BE OK AND LIVE A NORMAL LIFE..PLEASE EMAIL ME GROSS@CDPINC.COM Signed on: Mon Sep 27 10:54:08 EDT 1999

My son Bradley was born August 2,1999.When I was 20 weeks pregnant they thought he had HLHS,so I had to have a c-section at Ruby Memorial hospital(WestVirginia University Hospital)at 37 weeks ,Thank God he did not have HLHS, but had coarctation of the aorta and Corrected Transposition of the Great Arteries.Dr.Gustafson did surgery on the Coarctation when he was 3days old and he came home 10 days after he was born.He is doing wonderful gaining weight every day.They don't believe he will need surgery for the Corrected TGA.And he is on no medicine.God has truely blessed us.We would like to hear from others with these heart defects. Marty Signed on: Tue Sep 21 14:06:19 EDT 1999

My daughter had 2 VSD's and a Coarctation that we didn't find out about until three months old when we took her to the doctor with a cold. They operated 2 days later on the coarc, and had to go back when she was two to do an angioplasty to bust up scar tissue from the operation. The two VSD's closed up on their own, but the inner membrane kept on growing and threatened to cover her valve - she has a very distinctive murmur. Thankfully the membrane has stopped growing and we hope to have nothing but uneventful trips to the cardiologist from now on. She's eight now and healthy as can be. We had, as the medical people like to say, a "good outcome". Anyway, you have a great page and a great web ring. I pray all goes well for Cindy. Signed on: Tue Sep 21 12:45:01 EDT 1999

I have a teenage daughter with sitis inversus. I am having trouble locating much information on this condition. If you have any info, please let me know. Thanks and God bless! Signed on: Fri Sep 17 13:31:30 EDT 1999

I have a teenage daughter with sitis inversus. I am having trouble locating much information on this condition. If you have any info, please let me know. Thanks and God bless! Signed on: Fri Sep 17 13:30:54 EDT 1999

Hi I have a 4 year old angel with HLHS in the Va. Beach area. Would love to talk with other parents anywhere. Kodey has several other disablities but not to us. He had several strokes while recovering, mild Ceberal Palsy, developmental delay (he was a premmie) and what I am told is pretty normal with a HLHS child feeding problems. Hey we must be doing something right he's 4 and gets around by scooting or us teaching him to use his wheelchair. And he goes to preschool half a day. love and prayers to all who have been given these special angels to watch over. debbie/va beach Signed on: Thu Sep 16 22:37:32 EDT 1999

I Signed on: Thu Sep 16 04:19:28 EDT 1999

My hopes and prayes are with you. Signed on: Tue Sep 14 23:13:58 EDT 1999

I m pregnant 36 weeks.On normal control doctor find that baby have heart beeting from 270 b.p.m. They decide to start with lanoxine.Now is better (after two days). Can someone tell me what will happend with heart from child after he is born.Is something dangerous or will pass after he is born ? Please if somebody can give me answer on e-mail. PLEASE PLEASE PLEASE Signed on: Thu Sep 9 16:17:19 EDT 1999

My son Zachary was born on 3/31/99 with two symptoms of Tetralogy of Fallot. His pulmonary stenosis is virtually gone, the artery has widened on its own, with prayers and god's help. He still has the VSD and is going to have a catherization on September 20, 1999. I will know what is to come after that. Signed on: Wed Sep 1 12:23:04 EDT 1999

My son was born with congenital heart Failure.. 1 large hole in his heart and a narrowed co-arc.. He is a miracle baby! God Bless our babies! Signed on: Sun Aug 29 20:05:19 EDT 1999

I WOULD LIKE TO HEAR FROM ANYONE WITH DEXTROCARDIA, VENTRICULAR INVERSION, TRANSPOSTION OF THE GREAT ARTERIES, VENTRICULAR SEPTAL DEFECT AND SUBPULMONIC STENOSIS. MY 6 YEAR OLD DAUGHTER HAS ALL OF THESE HEART CONDITIONS AND I WOULD LIKE MORE INFORMATION FROM ACCTUAL PEOPLE WITH THESE CONDITIONS ALSO. Signed on: Fri Aug 20 14:19:16 EDT 1999

I WOULD LIKE TO HEAR FROM ANYONE WITH DEXTROCARDIA, VENTRICULAR INVERSION, TRANSPOSTION OF THE GREAT ARTERIES, VENTRICULAR SEPTAL DEFECT AND SUBPULMONIC STENOSIS. MY 6 YEAR OLD DAUGHTER HAS ALL OF THESE HEART CONDITIONS AND I WOULD LIKE MORE INFORMATION FROM ACCTUAL PEOPLE WITH THESE CONDITIONS ALSO. Signed on: Fri Aug 20 14:10:15 EDT 1999

My son was born on 7-2-99 with Total anonamolous pulmonary Venous Return, and Truncus Arteriosis. His surgery was on 8-2-99. He did wonderful. God was with him every step of the way. Anyone else have a child with these defects? GOD BLESS OUR HEART BABIES!!! Signed on: Thu Aug 19 22:58:19 EDT 1999

I HAVE A NINE YEAR OLD 53LB BOY WITH A CHOLESTRAL OVER 300. CAN YOU HELP ME. Signed on: Thu Aug 19 14:59:11 EDT 1999

I have a 27 year old son with a single vent. He had a Fontan at 9 and it was redone at 25. The doctors didn't think he would live past 3. He has his ups and downs.Interested in hearing from other post Fontans.914,434,3029 Signed on: Wed Aug 18 23:14:21 EDT 1999

I am single parent of a four year old named Nicholas who has Hypoplastic Left Heart Syndrome. Nick was the first survivor of The Norwood Procedure at Texas Children's Hospital. I would love to hear your experiences with CDH and share our experiences of life after The Norwood. Signed on: Tue Aug 10 17:33:10 EDT 1999

I am a single mother of a four year old with Hypoplastic Left Heart Syndrome. Nicholas was the first survivor at Texas Children's Hospital from The Norwood Procedure. I would love to hear from other parents with children of HLHS and share current stories of life after The Norwood. Signed on: Tue Aug 10 16:39:03 EDT 1999

I thought my child's problem was so great until I read all the other stories on the page. I have two year old twin boys, one of which has Dextracardia. We are so blessed that this condition is refined to just the heart. He is doing just fine. Signed on: Tue Jul 27 14:41:43 EDT 1999

I think what you have done for Cindy is great! She is an adoreable little girl. My third daughter, Cassandra, was born with Hypoplastic Left Heart Syndrome. She has endured two open heart surgeries and has one more to go. She was almost five weeks old before her the diagnosis of HLHS. Her first Norwood Procedure was tough on her and she almost did not make it up from the OR but with a quick thinking surgeon, Dr. Simon Abraham from the University of Kentucky Children's Hospital, saved her. They could not get her weaned off bypass. Rare use of a Left Ventricular Assist Device saved her life. She was hooked up the external assist device for one week. What a roller coaster ride for everyone, as many parents with a child suffering from CHD's are well familar with. She is a joy and a blessing. I never imagined that there were so many different heart defects and so many little fighters out there. Keep up the good work! Signed on: Fri Jul 23 23:51:11 EDT 1999

I think what you have done for Cindy is great! She is an adoreable little girl. My third daughter, Cassandra, was born with Hypoplastic Left Heart Syndrome. She has endured two open heart surgeries and has one more to go. She is a joy and a blessing. I never imagined that there were so many different heart defects and so many little fighters out there. Keep up the good work! Signed on: Fri Jul 23 23:45:15 EDT 1999

Hi I have a son that was born December 25, 1993 with a single left ventricle, and corrected transposition of the great arteries. He has been through 3 open heart surgeries and is now fully repaired. He is doing absolutely wonderful. He had his check up in March and is now off all of his heart medicine except for an aspirin a day. He is our miracle baby!!!! We would love to hear from you. Signed on: Wed Jul 21 23:03:50 EDT 1999

Hi I have a son that was born December 25, 1993 with a single left ventricle, and corrected transposition of the great arteries. He has been through 3 open heart surgeries and is now fully repaired. He is doing absolutely wonderful. He had his check up in March and is now off all of his heart medicine except for an aspirin a day. He is our miracle baby!!!! We would love to hear from you. Signed on: Wed Jul 21 22:58:28 EDT 1999

HELLO EVERYONE. I HAVE REALLY ENJOYED READING ALL OF THE STORIES AND MY HEART GOES OUT TO EACH AND EVERYONE OF YOU I ALSO HAVE A CHILD WITH CHD. HE WAS BORN IN 1986 WITH A TRANSPOSITION OF THE GREAT ARTERIES AND HAD CORRECTIVE SURGERY AT CHICAGO. HIS SURGERY WAS THE ARTERIAL SWITCH. WHEN HAS WAS 9 YEARS OLD ONE OF HIS TRANSPOSED ARTERIES KINKED AND HE HAD TO HAVE A BY-PASS AND A STENT PLACEMENT. I FEAR THAT THE CORONARY ARTERIES ARE GOING TO BE A SOURCE OF PROBLEMS FOR THESE CHILDERN AND WONDER IF OTHER HAVE HAD THIS SIMILAR COMPLICATION ? THIS PROCEDURE WAS TO BE MOREEFFECTIVE FOR THESE CHILDERN BECAUSE IT PREVENTED COMPLICATIONS SEEN WITH THE PREVIOUS CORRECTION-MUSTARD. I WONDER IF IN THE FUTURE IF HE REQUIRES MORE SURGERY IF I SHOULD CHECK OTHER CENTERS FOR A SECOND OPINION. HE HAS A LEAKY MITRAL VALVE AND WE WERE TOLD WHEN HE WAS A BABY THAT THIS WOULD NEED CORRECTED BEFORE HE STARTED KINDERGARDEN. I'M SURE GLAD THEY WERE WRONG. THIS WOULD HAVE MEANT COUMADIN FOR A LIFE TIME. NOW HE IS ON A BABY ASA AND A VASOTEC DAILY. THIS SUMMER WAS THE SUMMER OF HIS LIFE HE PLAYED BASEBALL AND HAD THE BEST HITTING AVERAGE ON HIS TEAM,PITCHED,AND MADE ALL STARS. FOR THOSE OF YOU WHO KNOW THE HEARTBREAK OF RESTRICTIONS AND SUCH, THIS WAS REALLY A WONDERFUL THING. IT WAS SO GOOD TO SEE HIM SO HAPPY AND FEELING SO GOOD ABOUT HIM SELF. HE HAD HARDLY ANY RESTRICTIONS UNTIL THE SECOND SURGERY AND EVEN PLAYED SOCCER. WE LIVE IN A VERY SMALL TOWN AND GOLF IS NOT VERY AVALIAVLE AND NO BOWLING LEAGUES (DOCTORS SUGGEST WE GET HIM INTO THESE TYPE OF ACTIVITIES) HOW DO OTHERS OF YOU DEAL WITH THIS?AS ALL OF US KNOW WE ALL STARTED OUT OUR PREGNANIES EXPECTED A HEALTHY BABY AND IT IS SUCH A SHOCK WHEN IT DOES NOT HAPPEN. BUT, WE ALL ADJUST TO WHAT SEEMED IMPOSSIBLE TO ADJUST TO. MY CHILDS 02 WAS 28% ON 100% O2 WHEN HE TOOK A HELICOPTER TO CARDINAL GLENNON THEY WERE AFRAID TO DO SURGERY ON HIM BECAUSE THEY HAD ONLY DONE THE SWITCH 3 TIMES AND SEND US HOME. HE GOT WORSE AND WAS IN BAD SHAPE WHEN WE GOT HIM TO CHICAGE AND FOUND A MD WHO WOULD DO THE SURGERY. THANK GOD WE DID AN INTERN AT CARDINAL GLENNON SUGGESTED THAT WE CHECK OTHER CHILDERN'S HOSPITAL TO SEE IF SOMEONE ELSE WOULD DO HSI SURGERY. AT FIRST I WAS OVERWHELMED AT THE THOUGHT BUT WE DID SEARCH AND MADE IT TO CHICAGO. HIS SURGERY WAS COMPLICATED BY LUNG CONGESTION AND THEY HAD A HARD TIME RESTARTING HIS HEART. HE HAD MANY POST-OP COMPLCATION AND THEY ONLY GAVE HIM A 50/50 CHANCE.I'M SO GLAD THINGS WORKED OUT AND I FEEL FOR THOSE OF YOU WHOSE CHILD IS ABOUT TO UNDERGO SURGERY OR IS PLANNED FOR THE FUTURE. NO ONE CAN REALLY UNDERSTAND THE SITUATION,TILL YOU HAVE BEEN THERE. I REMEMBER THE FEELING-FEAR,GRIEF,DAZED, OVERWHELMED. THE NIGHT BEFORE SURGERY, AS I HELD ME AND TOUCHED HIS CHEST I THOUGHT OF HOW TOMORROW IT WOULD BE OPENED AND THINGS WOULD ALL CHNAGE. I TOUCHED HIS TINY CHEST OVER AND OVER. THEN I DREAMED THAT HIM AND HIS DAD AND I FLOATED AWAY ON A CLOUD WHERE THER WERE NO PROBLEMS I HAVE NEVER FORGOT THAT DREAM. WITHOUT FAMILY SUPPORT AND FRIENDS I DON'T KNOW HOW I COULD HAVE DEALT WITH IT I SPENT MY LIFE THE FIRST FEW YEARS THINKING EVERYDAT THIS MIGHT BE THE LAST DAY I HAVE WITH HIM. MY WHOLE LIFE WAS OBCESSED WITH THIS. FINALLY I HAVE OVERCOME THIS AND AM ABLE TO NOT THINK LIKE THIS AND NOT BE IN SUCH CONSTANT ANXIETY. WE SHOULD ALL PRAY FOR ANSWERS TO WHAT CAUSES CHD AND HOPE THAT CORRECTIVE SURGERIES BECOME EASLIER AND WITH LESS COMPICATIONS. AGAIN THINKING OF ALL OF YOU AND I UNDERSTAND THE FEELING YOU ARE ALL HAVING AND PRAY FOR ALL OF YOU AND YOUR CHILDERN. LOVE-SHERRY Signed on: Wed Jul 21 19:32:19 EDT 1999

We have a baby who was born with TGA, a large VSD, A Small ASD, and a PDA. At 9 days old, he had a T-B Shunt. He is due to have catherization in August to see when they will perform the first Rastelli procedure. He is doing really well. We hope and pray that he continues to do well. Please email me at sjmo@wam.umd.edu if you are in a similar situation, or have had a loved one go through the Rastelli procedure. Stacey Signed on: Wed Jul 21 19:04:22 EDT 1999

MY SON IS 12 YEARS OLD NOW. HE WAS BORN WITH TRANSPOSITION OF THE GREAT VESSELS AND HAD THE SWITCH PROCEDURE AT 3 WEEKS OLD IN CHICAGO. HE THEN HAD TO HAVE A BY-PASS AND A STENT PLACEMENT WHEN HE WAS 9,DUE TO HIS CORONARY ATERY KINKING. HE LEADS A NORMAL LIFE WITH A FEW RESTRICTIONS. THIS SUMMER WAS THE SUMMER OF HIS LIFE. HE HAD THE HIGHEST BATTING AVERAGE ON HIS TEAM AND WAS ALSO A PITCHER. THEN HE MADE ALL STARS. I'M SURE THAT ALL OF YOU CAN UNDERSTAND HOW WONDERFUL THIS WAS FOR HIM AND ALSO FOR ME TO SEE HIM DO SO WELL.I AM WONDERING IF OTHERS WHO HAVE CHILDERN WHO HAVE HAD THE SWITCH PROCEDURE,HAVE HAD ANY PROBLEMS WITH THE TRANSPOSED ARTERIES. I KNOW THIS IS A CONCERN FOR THE DOCTORS. I WORRY ALOT ABOUT THESE ARTERIES FOR THE FUTURE,BUT THE DOCTORS DO NOT REALLY HAVE ANSWERS. THE SWITCH PROCEDURE IS A RATHER NEW SURGERY. WHEN MY SON HAD IT IN 1986,ONLY 50 OTHERS HAD BEEN DONE IN CHICAGO.I FEEL CLOSE TO EACH ONE OF ALL OF YOU WHNE I READ THESE STORIES AND WISH I HAD FOUND THIS SUPPORT GROUP EARLIER. PLEASE ALL TAKE CARE AND LETS ALL CONTINUE TO PRAY FOR THESE CHILDERN AND TO PRAY THAT BETTER CORRECTIVE MEASURES ARE FOUND AND THE CAUSE OF CHD. I AM ALSO INTERESTED IN ANY RESEARCH PROJECTS GOING ON ANYWHERE. SHERRY Signed on: Wed Jul 21 18:53:38 EDT 1999

MY SON IS 12 YEARS OLD NOW. HE WAS BORN WITH TRANSPOSITION OF THE GREAT VESSELS AND HAD THE SWITCH PROCEDURE AT 3 WEEKS OLD IN CHICAGO. HE THEN HAD TO HAVE A BY-PASS AND A STENT PLACEMENT WHEN HE WAS 9,DUE TO HIS CORONARY ATERY KINKING. HE LEADS A NORMAL LIFE WITH A FEW RESTRICTIONS. THIS SUMMER WAS THE SUMMER OF HIS LIFE. HE HAD THE HIGHEST BATTING AVERAGE ON HIS TEAM AND WAS ALSO A PITCHER. THEN HE MADE ALL STARS. I'M SURE THAT ALL OF YOU CAN UNDERSTAND HOW WONDERFUL THIS WAS FOR HIM AND ALSO FOR ME TO SEE HIM DO SO WELL.I AM WONDERING IF OTHERS WHO HAVE CHILDERN WHO HAVE HAD THE SWITCH PROCEDURE,HAVE HAD ANY PROBLEMS WITH THE TRANSPOSED ARTERIES. I KNOW THIS IS A CONCERN FOR THE DOCTORS. I WORRY ALOT ABOUT THESE ARTERIES FOR THE FUTURE,BUT THE DOCTORS DO NOT REALLY HAVE ANSWERS. THE SWITCH PROCEDURE IS A RATHER NEW SURGERY. WHEN MY SON HAD IT IN 1986,ONLY 50 OTHERS HAD BEEN DONE IN CHICAGO.I FEEL CLOSE TO EACH ONE OF ALL OF YOU WHNE I READ THESE STORIES AND WISH I HAD FOUND THIS SUPPORT GROUP EARLIER. PLEASE ALL TAKE CARE AND LETS ALL CONTINUE TO PRAY FOR THESE CHILDERN AND TO PRAY THAT BETTER CORRECTIVE MEASURES ARE FOUND AND THE CAUSE OF CHD. I AM ALSO INTERESTED IN ANY RESEARCH PROJECTS GOING ON ANYWHERE. SHERRY Signed on: Wed Jul 21 18:49:58 EDT 1999

MY SON THOMAS WAS BORN 7/7/94 IN UK WITH TGA/VSD & PULMONARY STENOSIS. HE HAS HAD TWO SHUNT OPERATIONS, 3 BALOON SEPTOSTOMY'S AND THE ROSTELLI OPERATION (OPEN HEART)IN JAN THIS YEAR. HE IS DOING GREAT!! Signed on: Mon Jul 19 16:53:46 EDT 1999

My son Brenden was born 11/01/94 with a very large VSD (no wall at all between the ventricals) and a ASD and was diagnosed at 2 days old. Our doctor, Dr. Alto, got Brenden an appointment with a Cardiologist the same day. The doctor gave me only half of the symptons of heart failure. Within ten days, I had to call our peditrician because it sounded like Bren was having a Asthma attack, sweating, had very cold hands and feet, would not eat or stay awake long, and seemed blue around his lips. Well I spoke to one of our doctors associates that was on call and he said to me that either Bren was in heart failure and could die very soon, or he had an infection in his heart and could die very soon, either way I had to get him into Children's Hospital right away. At that time I lived in southern Manitoba and was about 1.5 hours from Winnipeg and being November in Manitoba anything could happen weather wise. There was a layer of ice on the hwy and there was freezing rain falling. When I arrived at the hospital a resident, Dr Blake Bulloch came to see us. His first question after finding out that Bren had been getting worse over the past two days was "Why did you not bring him in sooner when the symptoms of heart failure continued to appear?" Of course, as I said earlier, Bren's cardiologist only gave me a list of half of the symptoms to watch for Brenden did not have any of the one's mentioned. He had all the other ones!!!! This was the beginning of a two week stay at the hospital. On Nov, 24, 1994 we were discharged. I stayed in the city with Bren for the weekend. I noticed that he started to have a bad cough. When I spoke to Dr. Alto, he said that he probly picked up a cold at the hospital, not to worry. On December 1, Bren was hospitalized again. This time, heart failure and pnemonia. It was discover that he had gastro reflux and aspirated formula into his lungs. On December 15, Brenden went into Cardiac Aresst. After he was admitted into PICU, I was told that his heart was enlarged and would need surgery as soon as possible but he was not well enough yet. Christmas was spent 1/2 in PICU then off to a ward. After New Years, Brenden seemed better but was not gaining any weight at all. He was to have surgery at the beginning of January, but came down with pnemonia again. Doctors kept asking me if I was going to go to Toronto, Saskatoon, or Nebraska for surgery. I did not understand these questions because we had a pediatric heart surgon in Winnipeg. Little did I know that the heart surgery program was suspended in Winnipeg due to a formal inquiry into the amount of deaths that occured after surgery. Brenden and I spent the next 6 months in Winnipeg, seperated from my husband and going back and forth from PICU and the ward. On June 15, 1995 we flew to Saskatoon's Royal University Hospital where Bren received his ASD/VSD reconstruction. After surgery, I was not told much but I noticed that Bren did not move his left side of his body and was having seizures. I asked many doctors and received no answers. I called Dr. Alto in Winnipeg and he told me that Bren had a stroke and nobody knew yet if the damage would be permament. We came back to Winnipeg on June 28 and on July 5, Brenden finally came home!!! He is now starting kindergarten in the fall just received a trophy for soccar. The only residual from his stroke is a problem with the movement in his left eye. The seizures have stopped and he is a healthy happy boy (how is very tall to my suprise). I wish that there was a support group in Winnipeg at the time. Now I would like to get one going and I would appreciate any feedback that anyone has. thank you Kim & Brenden Signed on: Sun Jul 18 22:40:34 EDT 1999

Our son Blake was born on 05/13/99 with a single ventricle,dextracardia,transposition of the great vessels,and subpulmonary stenosis. He had surgery at 4 days old to have the BT shunt inserted and ligation of the PDA. He is now 2mths old and doing well. We are waiting to see when he will have to have the Glenn shunt. Would like to hear from others with similar conditions. Signed on: Sun Jul 18 17:27:51 EDT 1999

Our son Blake was born on 05/13/99 with a single ventricle,dextracardia,transposition of the great vessels,and subpulmonary stenosis. He had surgery at 4 days old to have the BT shunt inserted and ligation of the PDA. He is now 2mths old and doing well. We are waiting to see when he will have to have the Glenn shunt. Would like to hear from others with similar conditions. Signed on: Sun Jul 18 17:26:34 EDT 1999

Our son Blake was born on 05/13/99 with a single ventricle,dextracardia,transposition of the great vessels,and subpulmonary stenosis. He had surgery at 4 days old to have the BT shunt inserted and ligation of the PDA. He is now 2mths old and doing well. We are waiting to see when he will have to have the Glenn shunt. Would like to hear from others with similar conditions. Signed on: Sun Jul 18 17:13:59 EDT 1999

Our son, Rossouw, was born on 19 April 1999. Three days after birth he was diagnosed as having a
single ventricle, ASD, VSD, narrowing of the Aorta, enlarged pulmonary artery and transposition of the
main arteries.

Within a period of five weeks from birth he had three major heart operations whereby the repair of the
coarctation was done, PA banding applied ( and re-adjusted) and a Norwood procedure was carried out.
Rossouw is still in hospital after three months, but we wish to have him home for the first time soon. A Fontan
operation is still planned for him in the near future, so all is not won yet.
I would like to hear from others with a similar problem and parents who had to deal with this tremendous
strain. Signed on: Tue Jul 13 12:17:26 EDT 1999

My son Chancellor Nicolas was born with HLHS and passed away when he was 31 days old. He got an
infection after his Norwood and suffered injury to the brain. He went to be an angel on
June 15, 1999 Signed on: Fri Jul 9 21:26:21 EDT 1999

My son James was born with HLHS.He passed away at 15 days old after the first surgery.He was on
the ecmo machine and did not survive.He will be missed by his mommy, daddy, and his three sisters
Brittany 7, Briana 5, and Kayla 2. He will live in our hearts forever.<3 Signed on: Fri Jul 9 14:01:05 EDT 1999

Hi, I have a 3 1/2 little boy who was born with a double inlet left ventricle,D-transpositon of the great
arteries, small outlet chamber, and coarctation of the aorta. he has undergone coarctation repair and
pulmonary artery banding; along with status post Davis-kay Stansel and Hemi-fontan and fontan
procedures. At this point and time he is doing very well. It is nice to see that we are all not alone. if anyone
would ever want to just talk about our children and similar situations, please feel free to e-mail me.
Thanks, Stacy Signed on: Sun Jul 4 13:03:45 EDT 1999

My son, Adam, was born with Transposition of the great arteries nearly for years ago. Had the switch
operation here in Hong Kong at ten days old and has not looked back since. I am now involved with the
Childrens' Heart foundation in Hong Kong. A support group for local families with children suffering from
all forms of heart disease. I am keen to hear of any other such groups. Duncan Pescod Signed on: Thu Jul 1 21:09:53 EDT 1999

Our daughter was diagnosed with Tetralogy of Fallot at seven days. At thirteen months (Nov 98) she
underwent corrective surgery - and she has never looked back. Anyone wishing to have a chat
please e-mail! Signed on: Fri Jun 25 01:33:21 EDT 1999

My son was born with a Coarctation of the Aorta. He has not had surgery yet. He is 9 1/2 months old.
Anyone who has gone through the surgery or is going to..please write. Signed on: Tue Jun 22 13:09:25 EDT 1999

Hello my name is Connie Fields, and I am the founder
of the Shone's Kid's Hearth Foundation, we are a knew
non-profit organization geered to helping the families
of kids with heart defects. The foundation was
started in memory of my son Samuel who passed away
this year on May 4 of 1999 to a rare heart condition
called Shones Complex. If you have any questions you
may email me at my email address ShonesKids@Yahoo.Com
Signed on: Tue Jun 15 05:02:02 EDT 1999

Our daughter Erin was born with hypoplastic right ventricle on 4 June 1999, we are currently at A.I.
Dupont in Delaware, she just had her first surgery 7 June and is doing well, Dr Norwood performed a PA
band and opened the flow between right and left atriums. Signed on: Tue Jun 8 21:31:58 EDT 1999

I'M 24 YEARS OLD AND WAS BORN WITH A SINGLE VENTRICAL (HALF A HEART) I
UNDERWENT 5 OPEN HEART SURGERIES THAT STARTED WHEN I WAS A WEEK OLD AND MY
LAST I WAS A FRESHMAN IN HIGH SCHOOL. THE MOST RECENT SURGURY WAS FOR A PACE
MAKER DUE TO MY HEART ARTHYMIA. I HAVE COME ALONG WAY. MY PARENTS AND I HAVE
BEEN THROUGH A LOT. WHEN I WAS BORN DOCTORS TOLD MY PARENTS I WOULD NOT LIVE TO
SEE MY TEENAGE YEARS, WELL DOCTORS AREN'T ALWAYS RIGHT! I LIVE A VERY FULLFILLED
LIFE. I WOULD LOVE TO TALK WITH YOU, PLEASE E-MAIL ME. THANKS AND GOOD
LUCK! Signed on: Thu May 20 14:52:42 EDT 1999

My little girl just had surgery to correct a partial endocardial cushion defect that included a ostium
primum ASD, a Secundum ASD, a cleft Mitral Valve, and a double orifice mitral valve. The DOMV was left an she is left with a 5% loss across that valve. There is no repair that can be done on the double orifice
valve, and it is very rare as I can not find anything on it online. We have had a curious complication of
severe vascular headaches post surgery and have a MRI scheduled this week. Caffeine helps, but until
we started using that she just suffered with them. The neurologist said he had seen this before with
children that have been on CPB(heart lung) machines, and that the longer they are on it, the more likely
it can happen. He thinks we are dealing with micro-emboli from under the clamps used on the artery for the bypass. We are so fortunate we have her.. Four cases of pneumonia in a year, one very very severe case
of antibiotic resistant bacterial pneumonia. There is a vacination for that. Children that are high risk(chd
kids) should probably have the pneumococcus vacine. If anyone knows much about double orifice
mitral valves, or the headache, please email me. Signed on: Tue May 18 18:15:38 EDT 1999

I am 37 years old and was diagnosed with and an ASD when I was 7 years old, I have 2 boys one age
3 and the other 9 months, I am expecting my 3rd chld in October 1999. So far, both my children
have been diagnosed with an ASD and PDA. The older one had surgery at the Hospital for Sick
Children in Toronto, Canada and it was very successful and my surgery was very successful. My 9
month is only 14lbs and because of his weight he will be required to have surgery at an earlier date. I
believe if there are any other parents that have gone through the same, I will like to hear from
you. Signed on: Thu May 13 11:02:58 EDT 1999

my daughter,Ch'aska,was born on Feb. 11/99 with a large VSD (9mm.) she had surgery to put a band
to help her with breathing and the excess fluid on the 24 of feb.she is due for open heart surgery in the
next future; I will love to hear from people who have the same experience or had the same experience.if
someone can speak spanish it'll be great,anyway,english is fine.I've been trying to join the ring with no
success,if someone can help me with these. there is no support group for parents of cardiac babies here
in australia so it's been great to find this web site.thanks. Signed on: Sun Apr 18 04:19:54 EDT 1999

My 30 year old daughter was born with Arteriosis Truncus
Type IV. She had a banding procedure at Pittsburgh
Children's Hospital when she was 10 months old. She
has had no further surgery, yet. Signed on: Sat Apr 17 09:51:09 EDT 1999

I am a 36-year-old diagnosed with anomalous pulmonary venous return last year. I am interested in
any other adults who have been diagnosed with this condition, and how it has affected their lives. A
wonderful website. Signed on: Mon Apr 12 15:00:58 EDT 1999

My 9m. old daughter was diagnosed with 3 VSD, a PDA and a leaking Mitral Valve on 4-6-99. She is
scheduled for Open Heart on 4-29-99. The largest VSD can be patched almost all the way. I would
really like to speak with someone who has had a similar experience. Signed on: Fri Apr 9 17:43:27 EDT 1999

We loved this site. We are new internet users who have 2 daughters with heart defects. The oldest
has a history similar to Cindy's and is 7 years old. We are very happy to say she is in the 90th percentile
for her weight. Finally. It took a long time, but there is hope. Signed on: Tue Apr 6 02:46:25 EDT 1999

MY 5 MONTH OLD DAUGHTER IS NOW KNOW AS THE FALLOTS BABY BY HOSPITALS AND
DOCTORS. I THINK I NEED TO KNOW WHAT THEY'RE TALKING ABOUT BEFORE SHE HAS HER
OP IN MAY. Signed on: Thu Apr 1 08:14:31 EST 1999

My 4 1/2 year old son had open heart surgery at 4 months
old his diagnosis was anomoulus left coronary artery.
Since this is a fairly rare condition I have not been able
to find any information on it. If anyone has a child with
this condition, any input would be greatly appreciated.
Thanks Signed on: Tue Mar 30 09:32:00 EST 1999

my 4 month old son has a very rare chd called double inlet left ventricle and transposition. I am having
trouble finding info about it. Please e-mail me if you have any info. thanks Signed on: Sat Mar 27 17:40:47 EST 1999

Bradley, my son was born on 11 July 1998 with critical pulmonary stenosis with hypoplastic right
ventricle. 1st operation done at 6 days old & 2nd at 18 days old. 3rd one will be on 2 April 99, at 8
months 3 weeks old. He is our 1st born and we hope that he will come out fine next week. We welcome
all opinions from those who is/was in the same boat as ourselves. Signed on: Fri Mar 26 23:14:00 EST 1999

test Signed on: Thu Mar 18 01:56:50 EST 1999

I have a daughter who has CHD since birth she is now 13yrs she also had a
stroke when she was three. would like somefeed back form anyone.
Thanks Signed on: Mon Feb 15 03:42:41 EST 1999

I HAVE A 4 1/2 YEARD OLD SON WHO WAS BORN WITH :
TRANSPOSITION OF THE GREAT ARTERIES VSD SEVERE PULMONARY STENOSIS
HE HAS SINCE BIRTH HAD 2 BLAYLOCK TAUSSIG SHUNTS, AND HAS JUST
HAD OPEN HEART SURGERY 8 DAYS AGO, (USING THE RASTELLI PROCEDURE)
@ THE ROYAL BROMTON & CHELSEA NATIONAL HEART AND LUNG HOSPITAL
IN LONDON.THANKFULLY IT WAS SUCESS WELL AT PRESENT ANYWAY.
PLEASE GET IN CONTACT IF YOU WANT BEST WISHES TO EVERYONE IN THE
SAME PREDICAMENT
JUSTIN COLLINS. Signed on: Fri Jan 29 16:14:42 EST 1999

My son was diagnosed with a large VSD. He is 3 weeks old
today and had open heart surgery this morning to correct. Doctors
wanted to wait until he was 9-12 mos. but his resperatory rate was over 100 and
endangered him. His weight was just under 5 lbs and he came through the
surgery with flying colors!!! Doctors predict a normal healthy life without
any further medication! God Bless! Signed on: Mon Jan 25 23:09:57 EST 1999

My daughter was born with hypoplastic left heart syndrome.
She had a heart transplant at age 5 months, and a tricuspid
valve replacement at age 2 1/2. She is doing well. I would like to
correspond with parents of children with similar situations. Signed on: Wed Jan 20 10:01:16 EST 1999

I lost my beautiful son Tayson to a blood clot that formed
in his shunt on Dec. 21/98. he was 3 months and 18 days old.
he had dextracardia, single
atrium, single ventricle, PS, and
others. My advice is never lose hope, and
love your babies all you can! Signed on: Mon Jan 18 02:15:25 EST 1999

I lost one of my twin sons to Truncus Arteriosis almost three
years ago. My
surviving son was born healthy. I would like
to hear from others with simular
experiences. Signed on: Sun Jan 17 20:59:24 EST 1999

I am a 42 yr old female that was diagnosed with TOF type2 at the Childrens
Medical Center in Dallas, Texas at the age of 3 years, I have not had
surgery to correct this problem, and am doing fine. A few minor problems that
go along with TOF but thats all. Great site, and I wish My parents could have
found others with TOF children. Both sides of the Family had a history
of Heart problems but no one told them. Doctors told my parents they would
never have another child with a Heart condition, 3 yrs later my brother was
born with almost the same disorder as I had. His surgery was performed when
he was 6,and again at 16. He is fine. would like to hear from other TOF
patients who are my age, and who have not had surgery. Signed on: Sun Jan 17 18:21:11 EST 1999

I lost a child with a congenital heart defect. Signed on: Sat Jan 9 12:38:44 EST 1999

What a beautiful little girl. Cindy, with your strength
and determination, your future looks as bright as the
stars! May God bless all our special children. They
were given to us for a reason, and I will cherish mine
forever!! Rita Pardee, mommy to Jacob, HLHS Signed on: Sat Jan 9 12:14:04 EST 1999

Our son was diagnosed with TOF 3 days ago at birth. He has a large VSD and
doctor's say it is too large to close on it's own. Will require surgery
within a year. I'm sure this sounds familiar. My question is this... is there
any connection between this heart defect and down syndrome? I'm hearing mixed
responses. Signed on: Fri Jan 8 10:42:39 EST 1999

We just learned that our 6 week old son has ToF and will require surgery
when he's between 4-6 months old. I'd like to talk to someone going through
the same thing. Signed on: Fri Jan 8 08:36:31 EST 1999

WE HAVE A DAUGHTER HALEY WITH TOF, SHUNT AT 8 DAYS, SHUNT AT 6 MONTHS, OPEN
HEART AT 2 YEARS. SHES DOING GREAT, WE WOULD LIKE TO HERE FROM OTHERS WITH
SIMILAR EXPERIENCE. Signed on: Tue Jan 5 22:17:46 EST 1999

my 6 yr old daughter CODI LYNN needs to have a ross procedure done in the
near future.i am looking for other parents that had to go through
this.dvramsay@aol.comm Signed on: Tue Jan 5 21:20:53 EST 1999

Our son Dennis is 2 1/2 years old, had a bypass operation last year february
and will have his glenn shunt operation in 2 weeks,jan.25. somebody explain
me please the difference between bypass and glenn shunt as i am swiss here in
tokyo and do not understand everything.Fortunately my wife is japanese and we
trust the doctors.they did a great job last time. We are still scared though.
regards Gary and Junko Blogowski Signed on: Sat Jan 2 09:23:39 EST 1999